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9/24/2018  |   8:30 AM - 9:45 AM   |  Catamount Room

Advocating for Change: Parent Experiences in Policy and Community Engagement

Parents continue to lead the way in changing public health and policy and bringing attention to CMV. Thisplenaryfeatures parents who used knowledge and energy they gained from the 2016 CMV Public Health and Policy Conference in Austin, Texas to make a difference in their states. Each parent has built key relationships and faced barriers but has moved CMV awareness and screening work forward. Parents will share their lessons learned to inspire additional work and empower parents and professionals to becomeadvocates for CMV awareness and prevention.

  • Explain how the Iowa CMV Law was passed
  • Explain the components of the Iowa CMV Law
  • TBA

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Amanda Devereaux (Co-Presenter), amandakdevereaux@gmail.com;
Amanda grew up in Des Moines, Iowa. She graduated from the College of St. Benedict in Minnesota in 2007, with her Bachelor’s degree in Nursing. She worked as a nurse in Minnesota for 7 years before moving back home to Iowa. Amanda currently works as a nurse home visitor for Maternal Child Health. She enjoys spending time with her husband, Paul, and 2 children, Atticus and Pippa. Pippa was born with Congenital CMV in 2015. Amanda started the Iowa CMV Network as a way to work on CMV legislation in Iowa. Amanda is passionate about advocating for children and families affected by Congenital Cytomegalovirus.

      ASHA DISCLOSURE:

Financial - No relevant financial relationship exists.

Nonfinancial - Has a Personal (I have a child born with cCMV. I participate in the Congenital and Inherited Disorders Advisory Committee for the state of Iowa.) relationship for Volunteer membership on advisory committee or review panels,Other volunteer activities.  


      AAA DISCLOSURE:

Financial - No relevant financial relationship exists.




Rebekah Ponsford-Hall (Co-Presenter), tba;
tba

      ASHA DISCLOSURE:

Financial -

Nonfinancial -


      AAA DISCLOSURE:

Financial - No relevant financial relationship exists.




Laura Sweet (Co-Presenter), tba2;
tba

      ASHA DISCLOSURE:

Financial -

Nonfinancial -


      AAA DISCLOSURE:

Financial - No relevant financial relationship exists.




Amy Nelson-Horton (Primary Presenter), njd02@hotmail.com;
tba

      ASHA DISCLOSURE:

Financial - No relevant financial relationship exists.

Nonfinancial - No relevant nonfinancial relationship exists.


      AAA DISCLOSURE:

Financial - No relevant financial relationship exists.