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9/23/2018  |   2:30 PM - 5:00 PM   |  Emerald Ballroom I

Legislative Action Planning: Raising Awareness of CMV Through Legislation

Over the past five years, sixteen states have proposed or passed legislation requiring CMV education, CMV testing, or both. This session is for those who want to increase that number and ensure that the laws in place are implemented. Presenters will provide insights on the pre-requisite relationship building and group thinking required for successful legislation. They will also assist participants to identify key stakeholders, including friendly and effective legislators in their states. Participants will be given the opportunity to ask questions and brainstorm solutions to problems that state initiatives face. Participants will work through an action planning template to determine their state's level of readiness for legislative action and steps to take to become ready or begin the legislative process. Effective legislation requires multiple stakeholders to working together in advance of and far beyond passing a law or changing a policy. The presentation will include discussions relevant for participants at all stages of legislation: building key relationships with stakeholders to develop an action team, the importance of compromise and alternatives to legislation such as study groups, and accountability for action required by legislation or policy changes and the ongoing work needed after legislation is passed. This hands-on action planning session is important for anyone (parents, public health workers, policy makers, clinicians, researchers ) wishing to increase CMV awareness, education, and action through legislative campaigns but also applies to those who are pursuing policy changes outside of legislation. Participants are encouraged to attend with others from their state if possible for the most effective planning.

  • Identify key stakeholders necessary for CMV legislative action.
  • Describe the process for proposing, developing, and implementing legislation.
  • Explore existing resources to assist in pursuing CMV legislation.

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Ronda Menlove (Primary Presenter), ronda.menlove@gmail.com;
Dr. Ronda Rudd Menlove served six terms in the Utah House of Representatives. She served as the House Chair of the Utah Legislature's Social Services Appropriations Subcommittee. Ronda was also a Senior Vice Provost at Utah State University. She has a background in special education and disability issues. Ronda has a granddaughter who is deaf due to a late-diagnosed congenital CMV infection.

      ASHA DISCLOSURE:

Financial -

Nonfinancial -


      AAA DISCLOSURE:

Financial - No relevant financial relationship exists.




Sara Doutre (POC,Co-Presenter), saradoutre@gmail.com;
Sara Doutre's daughter, Daisy, is deaf due to congenital CMV. Sara is a former special education teacher and worked for the United States Department of Education's Office of Special Education Programs. She is a special education policy consultant and advises states on special education, disability and early intervention policy. Sara worked on Utah's CMV legislation and is a co-founder and board member for the National CMV Foundation.

      ASHA DISCLOSURE:

Financial - No relevant financial relationship exists.

Nonfinancial - No relevant nonfinancial relationship exists.


      AAA DISCLOSURE:

Financial - No relevant financial relationship exists.