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9/24/2018  |   10:30 AM - 11:00 AM   |  Diamond Ballroom I

CMV Mythbusters: Evidence-based Responses to Common CMV Misunderstandings

“CMV, that’s the virus that comes from kitty litter, right?” “Sorry, our daycare policy prohibits your child from attending because we need to protect the other children from CMV” “I’m going to make sure my daughter gets CMV so she’s immune before she gets pregnant.” “CMV is very rare.” “Not kissing kids while pregnant is really hard. No pregnant mom can do that to reduce their risk.” Whether you are a CMV professional, a CMV parent, or an average woman meeting with a medical professional, you have probably heard a statement about CMV that is incorrect. How do you respond to these misstatements? In this session, presenters will talk about 10 common misunderstandings about CMV that have been told to us by other parents, teachers and therapists, and even medical professionals. We will present an evidence-based response to each misunderstanding and share resources that can be used to increase not only awareness of CMV but an accurate understanding of CMV. We know CMV awareness is low (only 9% of women know about CMV), we suspect that accurate knowledge about CMV, how it is transmitted, and who is at risk, is even lower. Participants will listen to evidence refuting each CMV misunderstanding and then work together to role play interactions that provide opportunities to correct misunderstandings and provide accurate information.

  • Identify common CMV misunderstandings.
  • Develop response to common CMV misunderstandings that are evidence- and data-based.
  • Role play interactions where common CMV misunderstandings can be corrected.

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Sara Doutre (Primary Presenter), saradoutre@gmail.com;
Sara Doutre's daughter, Daisy, is deaf due to congenital CMV. Sara is a former special education teacher and worked for the United States Department of Education's Office of Special Education Programs. She is a special education policy consultant and advises states on special education, disability and early intervention policy. Sara worked on Utah's CMV legislation and is a co-founder and board member for the National CMV Foundation.

      ASHA DISCLOSURE:

Financial - No relevant financial relationship exists.

Nonfinancial - No relevant nonfinancial relationship exists.


      AAA DISCLOSURE:

Financial - No relevant financial relationship exists.




Kim Hill (Co-Presenter), hill.kns@gmail.com;
Kim is a CMV parent doing advocacy work within the EHDI system in the state of North Carolina.

      ASHA DISCLOSURE:

Financial - No relevant financial relationship exists.

Nonfinancial - No relevant nonfinancial relationship exists.


      AAA DISCLOSURE:

Financial - No relevant financial relationship exists.




Ellen LaPlante (Co-Presenter), ellenlaplante@gmail.com;
TBD

      ASHA DISCLOSURE:

Financial - Receives Salary,Hold patent on equipment for Employment from test.  

Nonfinancial - Has a Personal (test) relationship for Volunteer employment.  


      AAA DISCLOSURE:

Financial - Receives support from test.  




Kathleen Muldoon (Co-Presenter), kmuldo@midwestern.edu;
Dr. Muldoon received her PhD (Anthropology) from Washington University in St. Louis. She is Associate Professor of Anatomy at Midwestern University, Glendale, AZ, where she teaches anatomy and embryology to medical and allied health students. Dr. Muldoon maintains several distinct areas of scholarly research, including anatomy education with interest in the effectiveness of teaching innovations on knowledge retention and public health knowledge. Her research interests include evaluating methods for prevention of congenital cytomegalovirus (CMV) infection through professional education, and promotion of CMV awareness and behavioral interventions in the community. Dr. Muldoon's research has been funded by the National Science Foundation, National Geographic Society, and American Philosophical Society, among others. She has given research seminars and outreach workshops nationally and internationally. Her work has been featured on National Public Radio. Dr. Muldoon is the proud mother of three children: her four-year-old son has multiple disabilities due to congenital CMV.

      ASHA DISCLOSURE:

Financial - No relevant financial relationship exists.

Nonfinancial - No relevant nonfinancial relationship exists.


      AAA DISCLOSURE:

Financial - No relevant financial relationship exists.